開放資料時代之健康及社會照顧

編輯歷史

時間 作者 版本
2015-11-09 09:18 – 09:27 松原 江 r3694 – r3696
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*Forward (finish)
- *Evidence suggests that giving patients access to their own healthcare records can increase healthy behavior and improve decision-making.
+ *Evidence suggests that giving patients access to their own healthcare records can increase healthy behavior and improve decision-making
*Giving providers access to comparative performance indicators across hospitals and physicians increases cost-efficiency in the healthcare system
*Giving researchers access to clinical data improves medical outcomes
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2014-12-19 11:58 – 13:30 Tom Shih r3530 – r3693
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*Assess risks , challenges and potential economic and social benefits
*Establish ODLE
+ *Open data vs Big data
+ *
+ *
+ *
+ *
+
*Introduction(finish)
*舉例:
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*III. Toward a conceptual framework for open data in healthcare
- *What is a conceptual framework and why do we need one?
+ **The use of certain kinds of inputs and data (INPUTS: OPEN DATA), by certain kinds of users (USERS), for certain kinds of activities (ACTIVITIES), will achieve certain outputs (OUTPUTS) and outcomes (INDICATORS) that indicate impact (IMPACT). Specific methodologies (METHODOLOGIES) will be used to collect and measure indicators, helping to assess impact
+ **
+
+
+ W*
*Inputs : what open data set was used ?
- *Users : Who is using the data ?
- *Activities: How is data used ?
- *Outputs: What was the value produced by the open data initiative(activity)?
- *Indicators : To what end ?
+
+ *Internal Data ( more used by researchers, agencies, watchdog organizations )
+ *Financial Data : cost and spending
+ *Administrative Data :
+ *Statistical/Diagnostic Data : statistics on chronic disease rates, preventable infections, and a wide range of other topics. HSCIC.gov.uk’ included data quality, hospital care, illnesses and conditions, mental health, patient experience, prescribing, primary care services, public health, social care, workforce data.
+ *Audits
+ *STREAMS OF HEALTH DATA
+ *Open Health Data on Practitioners: Examples include doctors, administrators, midwives, nurses, etc.
+ *Open Health Data on the System/Infrastructure: Examples include hospitals, clinics, equipment, and waiting times, etc.
+ *Open Health Data on Patients: Examples include diagnoses, prescribing rates, mortality rates, treatment options, etc.*Users : Who is using the data ?
+
+ *Different users of data may have different criteria for determining the success of an activity or programme.
+ *Internal Users : who work within the health system
+ *External Users : from a position that is partly or completely external to the NHS*Activities: How is data used ?
+
+ *Open data will be used for different purposes, depending on the position and intention of the user accessing the information
+ *The primary uses of open data will be used to improve management practices within the NHS, as well as to improve policies geared towards public services.
+ *The internal user intends to improve efficiency within the NHS; the external user seeks to increase accountability.*Outputs: What was the value produced by the open data initiative(activity)?
+
+ *For instance, an administrator using open data to assess the rate of preventable in- hospital disease would consider the output to be the difference between the expected rate of preventable disease and the actual reported result.
+ *Number of additional patients served
+ *Number of pounds saved
+ *Number of patients using data tools for decision making
+ *Percent decrease contraction of preventable in-hospital disease*Indicators : To what end ?
*Methodologies to Measure impact : According to to what measure?
*Impact : To add what value to the NHS and the UK as a whole ?
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2014-12-18 07:19 Tom Shih r3529
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2014-12-15 05:13 – 05:36 Tom Shih r3398 – r3528
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*Evidence :
*GP prescriptions for generic and patented statins in England
- ***4. utcomes
- **5. ustomers Service and Patient satisfaction
+ *Greater use of open data can also help control fraud : find cases of over-billing or fraudulent billing
+ *Taxonomy:
+ *Operational: Improving the speed at which patients are processed, treated, and discharged.
+ *Economic: Lowering the costs associated with each hospital or service, for example by comparing open data across regional and local contexts.
+ *Communication and Technology: Identifying spots in the healthcare system where communication needs to be improved both internally and externally (i.e., by reaching the broader public).
+ *Treatment: Determining which treatments work effectively, and for which populations
+ *Resource allocation: Determining where and when services are needed most.
+ *Examples:
+ *The Camden Health Metrics Explorer(US): open datasets linked to health exchange information and claims data, providing actionable metrics in real time; identify the patients who are heavy users of the healthcare system
+ *Aidin (US): lists and assesses specialized- care providers to simplify the patient-discharge process, and is aimed at preventing overspending. Aidin integrates into the discharge planning workflow to free social workers from administrative tasks and re-center their time around patients
+ *CDEC Open Health Data Platform: facilitate innovation in the field of data analysis, data visualization, service design, and other web and app development enabling innovation using linked health data**4. utcomes
+
+ *Proposition : drives competition between healthcare professionals => spur quality improvements and innovation
+ *Evidence:
+ *Early evidence: mixed => Now : increased data transparency can lead to improved outcomes
+ *New York State Cardiac Surgery Reporting System
+ *Germany and Sweden study
+ *Preventive healthcare : allows individuals to compare their health status with demographic information contained in public databases (NIH , CDC)**5. ustomers Service and Patient satisfaction
**6. nnovation and Economic growth
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2014-12-12 07:32 – 08:54 Tom Shih r3018 – r3397
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*
alue Propositions for Using Open Health Data
- **ccountability
+ **1. ccountability
*Proposition : OD can ensure health regulator and provider meeting standards
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*Clinical auditing can lead to changes in practice and greater adherence to published recommendations or guidelines
*exp: prescription quality, patient management,reductions in patient harms,resource allocation
- *Impact:
+ *Taxonomy:
*Political: Improved transparency and accountability in terms of reaching desired outcomes in public health.
*Economic: Improved accountability and transparency in spending, cost, waste, and fraud
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*Dr Foster Intelligence : benchmarking hospitals and healthcare commissioners. For instance,it used mortality datasets to improve accountability at the hospital level, which ultimately identified hospitals in the UK with abnormal high mortality rates and poor clinical practices as the causes.
*Better Procurement, Better Value, Better Care
- *IMS Health : uses open health and other data to provide a set of commercial health intelligence tools that allow their customers to assess healthcare performance and impact.**hoice
- **fficiency
- **utcomes
- **ustomers Service and Patient satisfaction
- **nnovation and Economic growth
+ *IMS Health : uses open health and other data to provide a set of commercial health intelligence tools that allow their customers to assess healthcare performance and impact.
+ *Dollars for Docs : whether their healthcare professional has received drug company money**2. hoice
+
+ *Proposition : To allow patients to seek out the services that best meet their individual healthcare needs ; increased access to health data, in turn driving patient satisfaction, quality improvements and the enhancement of standards in many areas within the NHS.
+ *Evidence:
+ *Medical information on the Internet plays a role in influencing patients’ decisions,in some cases an even bigger role than that played by their doctors. PMID:14517108
+ *US: nearly half (48.6%) went to the Internet first for information on cancer (compared to 10.9% who went to their doctor) Ref:45
+ *NHS: availability of medical data plays a significant role in influencing how patients seek care. Ref:47
+ *Open data can be particularly helpful in aiding patients in the access of information that will allow them to evaluate different treatment programmes. Open health data in this area should support the guidelines outlined in the NHS Choice Framework.
+ *Results from a study assessing the effectiveness of choice programmes showed that quality assessments will become more important in influencing patient decisions and choices as quality-related information is made more readily available.
+ *NHS's way: facilitating shared decision making between patients and their physicians.
+ *Study pro : 37% patients using NHS Choice Website: decrease in GP consultations & savings of approximately £44 million a year.
+ *Study cons: information on internet may not always lead patients to make better (or more informed) medical decisions
+ *Future ? : Shared decision-making. Such approaches combine data-driven and information-armed patients with the clinical judgment of doctors
+ *Taxonomy : Choice has at least two dimensions:
+ *Variety: Increasing the amount of information available to patients for their decision-making
+ *Quality: Increasing the quality, completeness, and timeliness of information provided to patients and the broader public to determine whether treatment is needed and/or available
+ *Examples
+ *NHS Choices : combination of decision tools, open data on service providers and, increasingly, patient feedback to enable patients to compare and choose treatments and services
+ *WiserTogether(US) : gathers open data through its Wiser Health Platform from consumers and doctors who have encountered similar medical issues and creates a list of best options based on clinical efficacy, financial considerations and treatment preferences. "choose the right care at the right time" " evidence-based, cost-effective treatment decisions"
+ *iTriage (US): provides patients with the information they need to make decisions about their symptoms, possible treatment methods, nearby care options, and medical providers. Content is produced by an in-house clinical team of physicians, as well as through a survey of published literature
+ *MedWatcher : Using data from the Food and Drug Administration, MedWatcher maintains a database of adverse side effects reported from different drugs
+ *Healthgrades : based upon open patient safety data, it compared healthcare providers is it likely to survive their hospitalization or encounter the least risk of major complications.**3. fficiency
+
+ *Proposition : more cost-effective, lowering costs, reducing fraud, increasing productivity, accelerate data-sharing practices and communication strategies, and will improve care quality
+ *Evidence :
+ *GP prescriptions for generic and patented statins in England
+ ***4. utcomes
+ **5. ustomers Service and Patient satisfaction
+ **6. nnovation and Economic growth
Potential Challenges and Barriers of Open data
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2014-12-12 05:04 – 05:44 Tom Shih r2768 – r3017
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*By making data open, you enable others to bring fresh perspectives, insights, and additional resources to your data, and that’s when it can become really valuable.
*the ambitious plan to shift an entire nation’s bureaucracy to more evidence-based decision-making
- *I. The open data era (OD as a driver of innovation)
+ *I. The open data era (OD as a driver of innovation)(finish)
Health Data and the Open Data Revolution
The NHS and Open Data: Where We Stand
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*Making data actionable for healthcare consumers
*All initiatives is to help the NHS achieve greater transparency and improve health outcomes
-
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
- Value Propositions for Using Open Health Data
- *Accountability
- *Choice
- *Efficiency
- *Outcomes
- *Customers Service and Patient satisfaction
- *Innovation and Economic growth
+ V*For more transparency and accountable governance
+ *
+ alue Propositions for Using Open Health Data
+ **ccountability
+
+ *Proposition : OD can ensure health regulator and provider meeting standards
+ *Evidence : New York State Cardiac Surgery Reporting System ; Annals of Internal Medicine
+ *Increasing data transparency appears to have a particularly powerful role on the behavior of regulators.
+ *Clinical auditing can lead to changes in practice and greater adherence to published recommendations or guidelines
+ *exp: prescription quality, patient management,reductions in patient harms,resource allocation
+ *Impact:
+ *Political: Improved transparency and accountability in terms of reaching desired outcomes in public health.
+ *Economic: Improved accountability and transparency in spending, cost, waste, and fraud
+ *Participatory/Citizen Involvement: Increased public participation in healthcare services
+ *Organizational/Clinical: Higher success rates with regard to internal NHS objectives on patient outcomes
+ *Example:
+ *Dr Foster Intelligence : benchmarking hospitals and healthcare commissioners. For instance,it used mortality datasets to improve accountability at the hospital level, which ultimately identified hospitals in the UK with abnormal high mortality rates and poor clinical practices as the causes.
+ *Better Procurement, Better Value, Better Care
+ *IMS Health : uses open health and other data to provide a set of commercial health intelligence tools that allow their customers to assess healthcare performance and impact.**hoice
+ **fficiency
+ **utcomes
+ **ustomers Service and Patient satisfaction
+ **nnovation and Economic growth
Potential Challenges and Barriers of Open data
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2014-12-12 03:39 – 03:56 羅佩琪 r2669 – r2767
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*IV. Building an open data learning environment (ODLE)
- As much as the NHS might intend or desire to open all its data, there do of course exist practical constraints. An ODLE can help prioritize which data to make open, and in what
+ (finish)As much as the NHS might intend or desire to open all its data, there do of course exist practical constraints. An ODLE can help prioritize which data to make open, and in what
way.
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1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
+ Broad, comparative view will make it easier to determine what works and what doesn’t, and to use cross-programme insights to build a more effective institutional strategy. Measuring impact should not be an afterthought; it must be considered up front at the design stage of every project.
*Possible Pathways
*Develop an NHS Open Data “Do and Learn Tank.” Unlike a traditional think tank, this would be structured to help launch new projects using lessons from existing programmes and initiatives and evaluate their results.
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2) ENGAGE THE PUBLIC IN DEFINING METRICS
+ The public also has valuable insights and lessons to contribute to this proposed ODLE. In addition, since all indicators and uses of data are inextricably linked with priorities and values, open data policies should reflect a larger social and political perspective. The NHS should therefore ensure that direct stakeholders (e.g., patients and providers) are included in decisions about open data and how it is used.
*Possible Pathways
*Develop a citizens’ open health data panel (similar to Hackney’s online citizen panel) to review metrics on a regular basis.
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*Develop an interactive version of the conceptual framework that can be annotated.
-  Create an expert, online advisory network to vet and review the conceptual framework.
-  Create channels for feedback and review by various stakeholders.
-  Research and evaluate similar frameworks used in other sectors or countries and build on insights or lessons learned.
-  Build on the Memorandum of Understanding between the United States’ HHS, and the NHS, and include impact
- assessment as a joint activity undertaken by these two countries.
+ *Create an expert, online advisory network to vet and review the conceptual framework
+ *Create channels for feedback and review by various stakeholders.
+ *Research and evaluate similar frameworks used in other sectors or countries and build on insights or lessons learned.
+ *Build on the Memorandum of Understanding between the United States’ HHS, and the NHS, and include impact assessment as a joint activity undertaken by these two countries.
10) ENGAGE STAKEHOLDERS IN SHAPING THE OPEN HEALTH DATA PROGRAMME
+ The NHS should engage key stakeholders on a regular basis to determine which datasets have the highest priority for them; what new datasets should be released as open data; and which open data collections are particularly easy or difficult to use.
*Possible Pathways
+
+ *Set up a wiki, forum, or combination of online tools for stakeholders to provide this feedback.
+ *Develop a subcommittee of the Open Data User Group to focus on health data specifically.
+ *Hold roundtables with different groups of stakeholders--health-related businesses, advocacy groups, and patient groups--to help shape government policy on the release of open health data.
*V. Conclusion
2014-12-12 03:22 – 03:36 Tom Shih r2516 – r2668
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*empowering patients to make decisions about their healthcare based on comparative data
*Users were also able to share their experiences of using NHS services
- *這個健保署一定不敢做, 因為和財團利益衝突**2010 : after election :
- more robust data collection framework since 1990; paramedical data after 2000
-
+ *這個健保署一定不敢做, 因為和財團利益衝突**2010 : after election : give priority to data transparency
+ *2012 :
+ *White Paper on Open Data and The Power of Information
+ *The passage of the Health and Social Care Act of 2012
+ *The Power of Information : 10-year-plan on IT strategy
+ *2013: CareConnect Pilot
+ *A phone and web service that allows citizens to interact with the NHS, get information, and provide real-time data through feedback and other mechanisms
+ m2014: MOU with " US Department of Health and Human Services"
+ *Looking forward :
+ *Releasing more open data
+ *2013 publishing surgery outcome data for 10 major specialties
+ *Expanding datasets to measure health outcomes
+ *Transform :Hospital Episode Statistics (HES) => Care Episode Statistics (CES)
+ *Linking hospital datasets to
+ *primary care data, community health services data,clinical audit data, cancer registry data, social care data, mental health data, genomic data
+ *Making data actionable for healthcare consumers
+ *All initiatives is to help the NHS achieve greater transparency and improve health outcomes
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
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2014-12-12 03:22 羅佩琪 r2515
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*Possible Pathways
- Develop an interactive version of the conceptual framework that can be annotated.
+ *Develop an interactive version of the conceptual framework that can be annotated.
 Create an expert, online advisory network to vet and review the conceptual framework.
 Create channels for feedback and review by various stakeholders.
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2014-12-12 03:22 – 03:22 Tom Shih r2512 – r2514
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*empowering patients to make decisions about their healthcare based on comparative data
*Users were also able to share their experiences of using NHS services
- *這個健保署一定不敢做, 因為和財團利益衝突**2010 : after elec
+ *這個健保署一定不敢做, 因為和財團利益衝突**2010 : after election :
more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:22 羅佩琪 r2511
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In order to bridge the gap between theory and practice, it is essential that various stakeholders participate in refining the framework. The framework must itself be responsive and flexible; its design must constantly be refined and implemented using the same level of transparency as embodied by the concept of open data.
*Possible Pathways
-
+ Develop an interactive version of the conceptual framework that can be annotated.
+  Create an expert, online advisory network to vet and review the conceptual framework.
+  Create channels for feedback and review by various stakeholders.
+  Research and evaluate similar frameworks used in other sectors or countries and build on insights or lessons learned.
+  Build on the Memorandum of Understanding between the United States’ HHS, and the NHS, and include impact
+ assessment as a joint activity undertaken by these two countries.
10) ENGAGE STAKEHOLDERS IN SHAPING THE OPEN HEALTH DATA PROGRAMME
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2014-12-12 03:22 – 03:22 Tom Shih r2507 – r2510
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*empowering patients to make decisions about their healthcare based on comparative data
*Users were also able to share their experiences of using NHS services
- *這個健保署一定不敢做, 因為和財團利益衝突**2010 :
+ *這個健保署一定不敢做, 因為和財團利益衝突**2010 : after elec
more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:21 – 03:22 羅佩琪 r2500 – r2506
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9) PUBLISH, INTEGRATE AND FINE-TUNE THE OPEN DATA CONCEPTUAL FRAMEWORK
- In order to bridge the gap between theory and practice, it is essential that various stakeholders participate in refining the framework. The framework must itself be responsive and
- flexible; its design must constantly be refined and implemented using the same level of transparency as embodied by the
- concept of open data.*Possible Pathways
+ In order to bridge the gap between theory and practice, it is essential that various stakeholders participate in refining the framework. The framework must itself be responsive and flexible; its design must constantly be refined and implemented using the same level of transparency as embodied by the concept of open data.
+ *Possible Pathways
+
+
10) ENGAGE STAKEHOLDERS IN SHAPING THE OPEN HEALTH DATA PROGRAMME
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2014-12-12 03:21 Tom Shih r2499
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*empowering patients to make decisions about their healthcare based on comparative data
*Users were also able to share their experiences of using NHS services
- *這個健保署一定不敢做, 因為和財團利益衝突**2010 :
+ *這個健保署一定不敢做, 因為和財團利益衝突**2010 :
more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:21 – 03:21 羅佩琪 r2497 – r2498
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9) PUBLISH, INTEGRATE AND FINE-TUNE THE OPEN DATA CONCEPTUAL FRAMEWORK
- In order to bridge the gap between theory and practice,
- it is essential that various stakeholders participate in refining the framework. The framework must itself be responsive and
+ In order to bridge the gap between theory and practice, it is essential that various stakeholders participate in refining the framework. The framework must itself be responsive and
flexible; its design must constantly be refined and implemented using the same level of transparency as embodied by the
concept of open data.*Possible Pathways
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2014-12-12 03:21 – 03:21 Tom Shih r2494 – r2496
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*empowering patients to make decisions about their healthcare based on comparative data
*Users were also able to share their experiences of using NHS services
- *這個健保署一定不敢做, 因為和財團利益衝突**
+ *這個健保署一定不敢做, 因為和財團利益衝突**2010 :
more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:21 羅佩琪 r2493
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9) PUBLISH, INTEGRATE AND FINE-TUNE THE OPEN DATA CONCEPTUAL FRAMEWORK
- *Possible Pathways
+ In order to bridge the gap between theory and practice,
+ it is essential that various stakeholders participate in refining the framework. The framework must itself be responsive and
+ flexible; its design must constantly be refined and implemented using the same level of transparency as embodied by the
+ concept of open data.*Possible Pathways
10) ENGAGE STAKEHOLDERS IN SHAPING THE OPEN HEALTH DATA PROGRAMME
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2014-12-12 03:18 – 03:21 Tom Shih r2421 – r2492
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*data-driven businesses , Open Data Institute
*NHS Open Data Milestone:
- *1980 : Collect data as early as 1980
- *more robust data collection framework since 1990; paramedical data after 2000
+ *1980 : Collect data as early as 198
+
+ *2005 : NHS Information Centre as the authoritative repository of NHS health information
+ *2007 : "NHS Choices" launched :
+ *empowering patients to make decisions about their healthcare based on comparative data
+ *Users were also able to share their experiences of using NHS services
+ *這個健保署一定不敢做, 因為和財團利益衝突**
+ more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:17 – 03:18 羅佩琪 r2401 – r2420
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*Possible Pathways
+ *Develop a conceptual map of users, uses and impact.
+ *Develop a site inventorying all available datasets within the NHS, making it easy for users to access datasets from a variety of online spaces and departments.
+ *Develop a crowdsourced resource of innovative start-ups and new applications that use open health data.
+
9) PUBLISH, INTEGRATE AND FINE-TUNE THE OPEN DATA CONCEPTUAL FRAMEWORK
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2014-12-12 03:17 – 03:17 Tom Shih r2396 – r2400
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*data-driven businesses , Open Data Institute
*NHS Open Data Milestone:
- *1980Collect data as early as 1980
+ *1980 : Collect data as early as 1980
*more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:17 羅佩琪 r2395
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8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
- *Including a dictionary of all open health data sets in the NHS along with the variety of uses and users. This map should include visualizations and other graphical representations to fully represent how open data is being accessed and used within the NHS.
+ Including a dictionary of all open health data sets in the NHS along with the variety of uses and users. This map should include visualizations and other graphical representations to fully represent how open data is being accessed and used within the NHS.
*Possible Pathways
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2014-12-12 03:17 – 03:17 Tom Shih r2393 – r2394
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*data-driven businesses , Open Data Institute
*NHS Open Data Milestone:
- *Collect data as early as 1980
+ *1980Collect data as early as 1980
*more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:17 – 03:17 羅佩琪 r2389 – r2392
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8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
- *Including a dictionary of all open health data sets in the NHS along with the
- variety of uses and users. This map should include visualizations and other graphical representations to fully represent how
- open data is being accessed and used within the NHS.
+ *Including a dictionary of all open health data sets in the NHS along with the variety of uses and users. This map should include visualizations and other graphical representations to fully represent how open data is being accessed and used within the NHS.
*Possible Pathways
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2014-12-12 03:17 – 03:17 Tom Shih r2385 – r2388
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*Hallmark of the UK’s data transparency policies : Third-party innovation
*data-driven businesses , Open Data Institute
- *NHS Open Data Milestone: Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
+ *NHS Open Data Milestone:
+ *Collect data as early as 1980
+ *more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:17 羅佩琪 r2384
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2014-12-12 03:17 Tom Shih r2383
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2014-12-12 03:17 – 03:17 羅佩琪 r2379 – r2382
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8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
- including a dictionary of all open health data sets in the NHS along with the
+ *Including a dictionary of all open health data sets in the NHS along with the
variety of uses and users. This map should include visualizations and other graphical representations to fully represent how
open data is being accessed and used within the NHS.
+
*Possible Pathways
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2014-12-12 03:17 Tom Shih r2378
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*Hallmark of the UK’s data transparency policies : Third-party innovation
*data-driven businesses , Open Data Institute
- *NHS Open Data Mileso: Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
+ *NHS Open Data Milestone: Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
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2014-12-12 03:17 羅佩琪 r2377
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8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
-
+ including a dictionary of all open health data sets in the NHS along with the
+ variety of uses and users. This map should include visualizations and other graphical representations to fully represent how
+ open data is being accessed and used within the NHS.
*Possible Pathways
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2014-12-12 03:11 – 03:17 Tom Shih r2340 – r2376
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*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
*The core of the government’s healthcare strategy:
*White Paper on Open Data and The Power of Information
*The passage of the Health and Social Care Act of 2012
- *Third-party innovation.
+ *Hallmark of the UK’s data transparency policies : Third-party innovation
+ *data-driven businesses , Open Data Institute
+ *NHS Open Data Mileso: Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
+
+
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(110 行未修改)
2014-12-12 03:11 羅佩琪 r2339
顯示 diff
(210 行未修改)
8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
- *Pathway
+ *Possible Pathways
9) PUBLISH, INTEGRATE AND FINE-TUNE THE OPEN DATA CONCEPTUAL FRAMEWORK
(8 行未修改)
2014-12-12 03:11 – 03:11 Tom Shih r2335 – r2338
顯示 diff
(108 行未修改)
*White Paper on Open Data and The Power of Information
*The passage of the Health and Social Care Act of 2012
+ *Third-party innovation.
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(110 行未修改)
2014-12-12 03:10 – 03:10 羅佩琪 r2326 – r2334
顯示 diff
(199 行未修改)
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
-
+ Build capacity quickly and broker debate around methodology and findings.
*Possible Pathways
(18 行未修改)
2014-12-12 03:09 Tom Shih r2325
顯示 diff
(222 行未修改)
2014-12-12 03:09 – 03:09 羅佩琪 r2321 – r2324
顯示 diff
(222 行未修改)
2014-12-12 03:09 Tom Shih r2320
顯示 diff
(222 行未修改)
2014-12-12 03:08 – 03:09 羅佩琪 r2302 – r2319
顯示 diff
(199 行未修改)
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
- *Hold an annual summit to exchange what has been learned, along with regular meet-ups.
-  Set up an NHS Open Data listserv.
- Consider establishing an external advisory or consulting board of experts to whom the NHS can turn for advice and guidance.
*Possible Pathways
+ *Hold an annual summit to exchange what has been learned, along with regular meet-ups.
+ *Set up an NHS Open Data listserv.
+ *Consider establishing an external advisory or consulting board of experts to whom the NHS can turn for advice and guidance.
+
8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
(12 行未修改)
2014-12-12 03:08 – 03:08 Tom Shih r2300 – r2301
顯示 diff
(107 行未修改)
*The core of the government’s healthcare strategy:
*White Paper on Open Data and The Power of Information
- *the passage of the Health and Social Care Act of 2012
+ *The passage of the Health and Social Care Act of 2012
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(109 行未修改)
2014-12-12 03:08 – 03:08 羅佩琪 r2298 – r2299
顯示 diff
(221 行未修改)
2014-12-12 03:08 – 03:08 Tom Shih r2296 – r2297
顯示 diff
(107 行未修改)
*The core of the government’s healthcare strategy:
*White Paper on Open Data and The Power of Information
+ *the passage of the Health and Social Care Act of 2012
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(109 行未修改)
2014-12-12 03:08 – 03:08 羅佩琪 r2294 – r2295
顯示 diff
(200 行未修改)
*Hold an annual summit to exchange what has been learned, along with regular meet-ups.
 Set up an NHS Open Data listserv.
-  Consider establishing an external advisory or consulting board of experts to whom the NHS can turn for advice and guidance.
+ Consider establishing an external advisory or consulting board of experts to whom the NHS can turn for advice and guidance.
(15 行未修改)
2014-12-12 03:08 Tom Shih r2293
顯示 diff
(106 行未修改)
*UK : Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
*The core of the government’s healthcare strategy:
- *
+ *White Paper on Open Data and The Power of Information
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(109 行未修改)
2014-12-12 03:08 – 03:08 羅佩琪 r2291 – r2292
顯示 diff
(198 行未修改)
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
-
+ *Hold an annual summit to exchange what has been learned, along with regular meet-ups.
+  Set up an NHS Open Data listserv.
+  Consider establishing an external advisory or consulting board of experts to whom the NHS can turn for advice and guidance.
(15 行未修改)
2014-12-12 03:08 – 03:08 Tom Shih r2285 – r2290
顯示 diff
(105 行未修改)
*inspiring innovation and enterprise that spurs social and economic growth.
*UK : Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
+ *The core of the government’s healthcare strategy:
+ *
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(107 行未修改)
2014-12-12 03:08 – 03:08 羅佩琪 r2283 – r2284
顯示 diff
(196 行未修改)
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
+
+
*Possible Pathways
(14 行未修改)
2014-12-12 03:06 – 03:07 Tom Shih r2263 – r2282
顯示 diff
(104 行未修改)
*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980 ; more robust data collection framework since 1990;
+ *UK : Collect data as early as 1980 ; more robust data collection framework since 1990; paramedical data after 2000
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(105 行未修改)
2014-12-12 03:06 – 03:06 羅佩琪 r2256 – r2262
顯示 diff
(191 行未修改)
*Possible Pathways
*Develop visualizations of how open data has made an impact--for example, through maps that show changes in healthcare quality, efficiency, or cost in different geographical areas.
- Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
-  Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
+ *Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
+ *Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
(17 行未修改)
2014-12-12 03:06 Tom Shih r2255
顯示 diff
(104 行未修改)
*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980 ; more robust data collection framework since 1990;
+ *UK : Collect data as early as 1980 ; more robust data collection framework since 1990;
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(105 行未修改)
2014-12-12 03:06 羅佩琪 r2254
顯示 diff
(191 行未修改)
*Possible Pathways
*Develop visualizations of how open data has made an impact--for example, through maps that show changes in healthcare quality, efficiency, or cost in different geographical areas.
-  Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
+ Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
 Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
(18 行未修改)
2014-12-12 03:06 – 03:06 Tom Shih r2250 – r2253
顯示 diff
(104 行未修改)
*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980 ; more robust data collection framework s
+ *UK : Collect data as early as 1980 ; more robust data collection framework since 1990;
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(105 行未修改)
2014-12-12 03:06 羅佩琪 r2249
顯示 diff
(190 行未修改)
*Possible Pathways
- *Develop visualizations of how open data has made an impact--for example, through maps that show changes inhealthcare quality, efficiency, or cost in different geographical areas.
+ *Develop visualizations of how open data has made an impact--for example, through maps that show changes in healthcare quality, efficiency, or cost in different geographical areas.
 Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
 Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
(19 行未修改)
2014-12-12 03:06 – 03:06 Tom Shih r2247 – r2248
顯示 diff
(214 行未修改)
2014-12-12 03:06 羅佩琪 r2246
顯示 diff
(190 行未修改)
*Possible Pathways
- *Develop visualizations of how open data has made an impact--for example, through maps that show changes in
- healthcare quality, efficiency, or cost in different geographical areas.
+ *Develop visualizations of how open data has made an impact--for example, through maps that show changes inhealthcare quality, efficiency, or cost in different geographical areas.
 Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
 Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
(19 行未修改)
2014-12-12 03:06 – 03:06 Tom Shih r2242 – r2245
顯示 diff
(104 行未修改)
*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980 ; more robust data collection framework w
+ *UK : Collect data as early as 1980 ; more robust data collection framework s
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(106 行未修改)
2014-12-12 03:06 羅佩琪 r2241
顯示 diff
(190 行未修改)
*Possible Pathways
- Develop visualizations of how open data has made an impact--for example, through maps that show changes in
+ *Develop visualizations of how open data has made an impact--for example, through maps that show changes in
healthcare quality, efficiency, or cost in different geographical areas.
 Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
(20 行未修改)
2014-12-12 03:06 – 03:06 Tom Shih r2236 – r2240
顯示 diff
(104 行未修改)
*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980 ; more robust data collection framework
+ *UK : Collect data as early as 1980 ; more robust data collection framework w
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(106 行未修改)
2014-12-12 03:06 羅佩琪 r2235
顯示 diff
(194 行未修改)
 Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
 Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
+
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
(16 行未修改)
2014-12-12 03:06 Tom Shih r2234
顯示 diff
(104 行未修改)
*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980 ; more robust data collection framework
+ *UK : Collect data as early as 1980 ; more robust data collection framework
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(105 行未修改)
2014-12-12 03:06 羅佩琪 r2233
顯示 diff
(194 行未修改)
 Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
 Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
+
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
(15 行未修改)
2014-12-12 03:06 – 03:06 Tom Shih r2230 – r2232
顯示 diff
(104 行未修改)
*driving choice and improvements in public services
*inspiring innovation and enterprise that spurs social and economic growth.
- *UK : Collect data as early as 1980
+ *UK : Collect data as early as 1980 ; more robust data collection framework
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(104 行未修改)
2014-12-12 03:06 羅佩琪 r2229
顯示 diff
(190 行未修改)
*Possible Pathways
-
+ Develop visualizations of how open data has made an impact--for example, through maps that show changes in
+ healthcare quality, efficiency, or cost in different geographical areas.
+  Develop an Open Health Data 10 – a listing of the ten most impactful uses of open health data.
+  Consider wikis, seminars and other means for stakeholders within the NHS to share stories and experiences with open data.
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
(15 行未修改)
2014-12-12 03:05 – 03:05 Tom Shih r2218 – r2228
顯示 diff
(210 行未修改)
2014-12-12 03:05 – 03:05 羅佩琪 r2216 – r2217
顯示 diff
(210 行未修改)
2014-12-12 03:03 – 03:05 Tom Shih r2177 – r2215
顯示 diff
(99 行未修改)
*original data are not included
*I.2 The NHS and Open Data: Where We Stand
-
+ *Data is the 21st century’s new raw material
+ *Data value
+ *holding governments to account
+ *driving choice and improvements in public services
+ *inspiring innovation and enterprise that spurs social and economic growth.
+ *UK : Collect data as early as 1980
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(101 行未修改)
2014-12-12 03:03 – 03:03 羅佩琪 r2171 – r2176
顯示 diff
(205 行未修改)
2014-12-12 03:03 – 03:03 Tom Shih r2169 – r2170
顯示 diff
(98 行未修改)
*prepared for presentation (doc, pdf )
*original data are not included
- *
+ *I.2 The NHS and Open Data: Where We Stand
+
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(101 行未修改)
2014-12-12 03:02 – 03:02 羅佩琪 r2167 – r2168
顯示 diff
(173 行未修改)
5) STAY FLEXIBLE AND ADAPTIVE IN MEASURING IMPACT.
NHS will need to find a balance between a [centralized measurement function] (which sets measurement standards, aggregates data across programmes, and monitors data
- quality) and a more diffused structure that empowers users at different levels of the organization.
+ quality) and [a more diffused structure] that empowers users at different levels of the organization.
*Possible Pathways
(26 行未修改)
2014-12-12 03:02 – 03:02 Tom Shih r2162 – r2166
顯示 diff
(98 行未修改)
*prepared for presentation (doc, pdf )
*original data are not included
-
+ *
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(101 行未修改)
2014-12-12 03:02 羅佩琪 r2161
顯示 diff
(172 行未修改)
5) STAY FLEXIBLE AND ADAPTIVE IN MEASURING IMPACT.
- NHS will need to find a balance between a [centralized measurement function (which sets measurement standards, aggregates data across programmes, and monitors data
+ NHS will need to find a balance between a [centralized measurement function] (which sets measurement standards, aggregates data across programmes, and monitors data
quality) and a more diffused structure that empowers users at different levels of the organization.
(27 行未修改)
2014-12-12 03:02 – 03:02 Tom Shih r2159 – r2160
顯示 diff
(98 行未修改)
*prepared for presentation (doc, pdf )
*original data are not included
+
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(101 行未修改)
2014-12-12 03:02 – 03:02 羅佩琪 r2157 – r2158
顯示 diff
(171 行未修改)
5) STAY FLEXIBLE AND ADAPTIVE IN MEASURING IMPACT.
- NHS will need to find a balance between a centralized measurement function (which sets measurement standards, aggregates data across programmes, and monitors data
+ NHS will need to find a balance between a [centralized measurement function (which sets measurement standards, aggregates data across programmes, and monitors data
quality) and a more diffused structure that empowers users at different levels of the organization.
(27 行未修改)
2014-12-12 03:02 Tom Shih r2156
顯示 diff
(63 行未修改)
Health Data and the Open Data Revolution
The NHS and Open Data: Where We Stand
+
*I.1 Health Data and the Open Data Revolution
*Trend of big data and open data is related, but not identical !
(135 行未修改)
2014-12-12 03:02 – 03:02 羅佩琪 r2153 – r2155
顯示 diff
(202 行未修改)
2014-12-12 03:02 – 03:02 Tom Shih r2148 – r2152
顯示 diff
(63 行未修改)
Health Data and the Open Data Revolution
The NHS and Open Data: Where We Stand
+ *I.1 Health Data and the Open Data Revolution
*Trend of big data and open data is related, but not identical !
*Bid data :
(134 行未修改)
2014-12-12 03:01 – 03:02 羅佩琪 r2135 – r2147
顯示 diff
(173 行未修改)
*Possible Pathways
- Hold regular “What Works Camps” that connect various users and researchers.
-  Ensure that all metrics (especially those to measure use and impact) are categorized by different levels and can be
- analyzed separately.
-  Continue ongoing research into new and existing approaches to impact measurement. This research effort should be
- considered a core part of the NHS open data programme.
+ *Hold regular “What Works Camps” that connect various users and researchers.
+ *Ensure that all metrics (especially those to measure use and impact) are categorized by different levels and can be analyzed separately.
+ *Continue ongoing research into new and existing approaches to impact measurement. This research effort should be considered a core part of the NHS open data programme.
(21 行未修改)
2014-12-12 03:01 – 03:01 Tom Shih r2132 – r2134
顯示 diff
(87 行未修改)
*Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
*Challenge : concerning privacy and identity
- *Health data classification in : by accessibility ( from open to closed)
+ *Health data classification in NHS : by accessibility ( from open to closed)
*Open Health Data
*Open Government License (UK)
(111 行未修改)
2014-12-12 03:01 羅佩琪 r2131
顯示 diff
(173 行未修改)
*Possible Pathways
-
+ Hold regular “What Works Camps” that connect various users and researchers.
+  Ensure that all metrics (especially those to measure use and impact) are categorized by different levels and can be
+ analyzed separately.
+  Continue ongoing research into new and existing approaches to impact measurement. This research effort should be
+ considered a core part of the NHS open data programme.
(21 行未修改)
2014-12-12 03:01 – 03:01 Tom Shih r2129 – r2130
顯示 diff
(87 行未修改)
*Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
*Challenge : concerning privacy and identity
- *Health data classification : by accessibility ( from open to closed)
+ *Health data classification in : by accessibility ( from open to closed)
*Open Health Data
*Open Government License (UK)
(107 行未修改)
2014-12-12 03:01 – 03:01 羅佩琪 r2125 – r2128
顯示 diff
(171 行未修改)
NHS will need to find a balance between a centralized measurement function (which sets measurement standards, aggregates data across programmes, and monitors data
quality) and a more diffused structure that empowers users at different levels of the organization.
- Hold regular “What Works Camps” that connect various users and researchers.
-  Ensure that all metrics (especially those to measure use and impact) are categorized by different levels and can be
- analyzed separately.
-  Continue ongoing research into new and existing approaches to impact measurement. This research effort should be
- considered a core part of the NHS open data programme.
*Possible Pathways
+
+
6) SHARE WHAT IS LEARNED (INCLUDING FAILURES) WITH EVERYONE
(20 行未修改)
2014-12-12 03:01 Tom Shih r2124
顯示 diff
(95 行未修改)
*Published Health Data
*prepared for presentation (doc, pdf )
- *original data are not include
+ *original data are not included
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(102 行未修改)
2014-12-12 03:01 羅佩琪 r2123
顯示 diff
(171 行未修改)
NHS will need to find a balance between a centralized measurement function (which sets measurement standards, aggregates data across programmes, and monitors data
quality) and a more diffused structure that empowers users at different levels of the organization.
-
+ Hold regular “What Works Camps” that connect various users and researchers.
+  Ensure that all metrics (especially those to measure use and impact) are categorized by different levels and can be
+ analyzed separately.
+  Continue ongoing research into new and existing approaches to impact measurement. This research effort should be
+ considered a core part of the NHS open data programme.
*Possible Pathways
(22 行未修改)
2014-12-12 03:00 – 03:01 Tom Shih r2101 – r2122
顯示 diff
(92 行未修改)
*available from data.gov.uk hscic.gov.uk & appendix V
*Restricted Health Data
- *anonymized personal or proprietary information
+ *anonymized personal or proprietary information by NHS
*Published Health Data
+ *prepared for presentation (doc, pdf )
+ *original data are not include
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(98 行未修改)
2014-12-12 03:00 – 03:00 羅佩琪 r2096 – r2100
顯示 diff
(167 行未修改)
5) STAY FLEXIBLE AND ADAPTIVE IN MEASURING IMPACT.
+ NHS will need to find a balance between a centralized measurement function (which sets measurement standards, aggregates data across programmes, and monitors data
+ quality) and a more diffused structure that empowers users at different levels of the organization.
+
*Possible Pathways
(22 行未修改)
2014-12-12 03:00 – 03:00 Tom Shih r2077 – r2095
顯示 diff
(90 行未修改)
*Open Health Data
*Open Government License (UK)
- *available from data.gov.uk hscic.gov.uk
+ *available from data.gov.uk hscic.gov.uk & appendix V
*Restricted Health Data
+ *anonymized personal or proprietary information
*Published Health Data
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
(96 行未修改)
2014-12-12 02:59 – 02:59 羅佩琪 r2071 – r2076
顯示 diff
(192 行未修改)
2014-12-12 02:58 – 02:59 Tom Shih r2044 – r2070
顯示 diff
(90 行未修改)
*Open Health Data
*Open Government License (UK)
+ *available from data.gov.uk hscic.gov.uk
*Restricted Health Data
*Published Health Data
(97 行未修改)
2014-12-12 02:58 – 02:58 羅佩琪 r2042 – r2043
顯示 diff
(191 行未修改)
2014-12-12 02:58 – 02:58 Tom Shih r2023 – r2041
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
- *P
+ *Open Government License (UK)
*Restricted Health Data
*Published Health Data
(97 行未修改)
2014-12-12 02:58 羅佩琪 r2022
顯示 diff
(161 行未修改)
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
*Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
- *Use online and offline meet-ups and other approaches to create a culture that encourages knowledge sharing andcollaboration with other organizations
+ *Use online and offline meet-ups and other approaches to create a culture that encourages knowledge sharing and collaboration with other organizations
(25 行未修改)
2014-12-12 02:58 Tom Shih r2021
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
- *
+ *P
*Restricted Health Data
*Published Health Data
(97 行未修改)
2014-12-12 02:58 羅佩琪 r2020
顯示 diff
(161 行未修改)
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
*Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
- *Use online and offline meet-ups and other approaches to create a culture that encourages knowledge sharing and
- collaboration with other organizations
+ *Use online and offline meet-ups and other approaches to create a culture that encourages knowledge sharing andcollaboration with other organizations
(25 行未修改)
2014-12-12 02:58 Tom Shih r2019
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
+ *
*Restricted Health Data
*Published Health Data
(98 行未修改)
2014-12-12 02:58 – 02:58 羅佩琪 r2014 – r2018
顯示 diff
(160 行未修改)
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
*Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
- *Use online and offline meet-ups and other ap
+ *Use online and offline meet-ups and other approaches to create a culture that encourages knowledge sharing and
+ collaboration with other organizations
(25 行未修改)
2014-12-12 02:57 – 02:57 Tom Shih r2007 – r2013
顯示 diff
(90 行未修改)
*Open Health Data
*Restricted Health Data
- *P
+ *Published Health Data
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(95 行未修改)
2014-12-12 02:57 羅佩琪 r2006
顯示 diff
(159 行未修改)
*Possible Pathways
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
- *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.Use online and offline meet-ups and other ap
+ *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
+ *Use online and offline meet-ups and other ap
(25 行未修改)
2014-12-12 02:57 Tom Shih r2005
顯示 diff
(90 行未修改)
*Open Health Data
*Restricted Health Data
- *
+ *P
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(94 行未修改)
2014-12-12 02:57 – 02:57 羅佩琪 r2002 – r2004
顯示 diff
(159 行未修改)
*Possible Pathways
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
- *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
- Use online and offline meet-ups and other ap
+ *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.Use online and offline meet-ups and other ap
(25 行未修改)
2014-12-12 02:57 Tom Shih r2001
顯示 diff
(90 行未修改)
*Open Health Data
*Restricted Health Data
+ *
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(95 行未修改)
2014-12-12 02:57 羅佩琪 r2000
顯示 diff
(159 行未修改)
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
*Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
- Use online and offline meet-ups and other ap
+ Use online and offline meet-ups and other ap
(25 行未修改)
2014-12-12 02:57 Tom Shih r1999
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
- *Restricted Health
+ *Restricted Health Data
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(95 行未修改)
2014-12-12 02:57 羅佩琪 r1998
顯示 diff
(159 行未修改)
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
*Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
-  Use online and offline meet-ups and other ap
+ Use online and offline meet-ups and other ap
(25 行未修改)
2014-12-12 02:57 – 02:57 Tom Shih r1995 – r1997
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
- *Restricted
+ *Restricted Health
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(95 行未修改)
2014-12-12 02:57 羅佩琪 r1994
顯示 diff
(158 行未修改)
*Possible Pathways
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
- *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such adirectory would also include a list of key contacts and organizations.
+ *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a directory would also include a list of key contacts and organizations.
 Use online and offline meet-ups and other ap
(26 行未修改)
2014-12-12 02:57 – 02:57 Tom Shih r1992 – r1993
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
- *Restrict
+ *Restricted
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(95 行未修改)
2014-12-12 02:57 羅佩琪 r1991
顯示 diff
(158 行未修改)
*Possible Pathways
*Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
- *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a
- directory would also include a list of key contacts and organizations.
+ *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such adirectory would also include a list of key contacts and organizations.
 Use online and offline meet-ups and other ap
(26 行未修改)
2014-12-12 02:57 – 02:57 Tom Shih r1988 – r1990
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
- *
+ *Restrict
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(96 行未修改)
2014-12-12 02:57 羅佩琪 r1987
顯示 diff
(157 行未修改)
*Possible Pathways
- *Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a
+ *Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
+ *Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a
directory would also include a list of key contacts and organizations.
 Use online and offline meet-ups and other ap
(27 行未修改)
2014-12-12 02:57 Tom Shih r1986
顯示 diff
(89 行未修改)
*Health data classification : by accessibility ( from open to closed)
*Open Health Data
+ *
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(95 行未修改)
2014-12-12 02:57 羅佩琪 r1985
顯示 diff
(156 行未修改)
*Possible Pathways
- *Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
- Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a
+ *Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a
directory would also include a list of key contacts and organizations.
 Use online and offline meet-ups and other ap
(27 行未修改)
2014-12-12 02:57 Tom Shih r1984
顯示 diff
(88 行未修改)
*Challenge : concerning privacy and identity
*Health data classification : by accessibility ( from open to closed)
- *
+ *Open Health Data
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(96 行未修改)
2014-12-12 02:57 – 02:57 羅佩琪 r1976 – r1983
顯示 diff
(154 行未修改)
4) DEVELOP A COMMON ASSESSMENT FRAMEWORK
It is important to coordinate with other organizations, sectors and countries that are also designing analytical frameworks for the use of open data across sectors.
-
*Possible Pathways
+ *Set up an annual meeting/listserv/monthly hangouts on open health data research to trade best practices and ideas.
+ Create a directory (perhaps in wiki format) of other assessment frameworks across countries and sectors. Such a
+ directory would also include a list of key contacts and organizations.
+  Use online and offline meet-ups and other ap
+
5) STAY FLEXIBLE AND ADAPTIVE IN MEASURING IMPACT.
(24 行未修改)
2014-12-12 02:57 – 02:57 Tom Shih r1955 – r1975
顯示 diff
(87 行未修改)
*Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
*Challenge : concerning privacy and identity
- *Health data classification
+ *Health data classification : by accessibility ( from open to closed)
+ *
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(92 行未修改)
2014-12-12 02:55 – 02:56 羅佩琪 r1947 – r1954
顯示 diff
(152 行未修改)
4) DEVELOP A COMMON ASSESSMENT FRAMEWORK
+ It is important to coordinate with other organizations, sectors and countries that are also designing analytical frameworks for the use of open data across sectors.
+
*Possible Pathways
(26 行未修改)
2014-12-12 02:49 – 02:50 Tom Shih r1927 – r1946
顯示 diff
(86 行未修改)
*Without restrictions of copyright or other mechanisms of control
*Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
+ *Challenge : concerning privacy and identity
+ *Health data classification
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(90 行未修改)
2014-12-12 02:48 – 02:48 羅佩琪 r1924 – r1926
顯示 diff
(129 行未修改)
*Fund the creation of NHS open health data fellowships for students and graduates with compelling ideas and practical ways to implement them.
*Develop an open health data mentor network to encourage and train new recruits and younger members of the NHS in the use of open data.
+
2) ENGAGE THE PUBLIC IN DEFINING METRICS
(46 行未修改)
2014-12-12 02:47 – 02:47 Tom Shih r1922 – r1923
顯示 diff
(84 行未修改)
*political operations
*fundraising
- *without restrictions of copyright or other mechanisms of control
+ *Without restrictions of copyright or other mechanisms of control
*Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
(90 行未修改)
2014-12-12 02:47 羅佩琪 r1921
顯示 diff
(138 行未修改)
*Create a “Metrics Bank” of important indicators, with input from stakeholders, researchers, and experts in the field who have studied the relevant literature.
*Prioritize the creation of an inventory of datasets by departments within the NHS, and invite experts to curate the datasets released to the public.
+
3) STAY FOCUSED ON WHAT REALLY MATTERS.
(36 行未修改)
2014-12-12 02:47 – 02:47 Tom Shih r1917 – r1920
顯示 diff
(84 行未修改)
*political operations
*fundraising
+ *without restrictions of copyright or other mechanisms of control
*Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
(89 行未修改)
2014-12-12 02:47 羅佩琪 r1916
顯示 diff
(143 行未修改)
*Possible Pathways
*Develop NHS Open Data Stories that will allow stakeholders to share how open data improved people’s lives in real time.
- *Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are mostimportant to the public, and ensure that success metrics and indicators capture those priorities.
+ *Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are most important to the public, and ensure that success metrics and indicators capture those priorities.
(29 行未修改)
2014-12-12 02:47 Tom Shih r1915
顯示 diff
(177 行未修改)
2014-12-12 02:47 羅佩琪 r1914
顯示 diff
(143 行未修改)
*Possible Pathways
*Develop NHS Open Data Stories that will allow stakeholders to share how open data improved people’s lives in real time.
- *Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are most
- important to the public, and ensure that success metrics and indicators capture those priorities.
+ *Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are mostimportant to the public, and ensure that success metrics and indicators capture those priorities.
(29 行未修改)
2014-12-12 02:47 – 02:47 Tom Shih r1910 – r1913
顯示 diff
(79 行未修改)
*available online in a downloadable format
*Application:
- * after non-personally identifiable (through anonymization or pseudonymization)
+ *After non-personally identifiable (through anonymization or pseudonymization)
*land records
*welfare schemes
(94 行未修改)
2014-12-12 02:47 – 02:47 羅佩琪 r1908 – r1909
顯示 diff
(143 行未修改)
*Possible Pathways
*Develop NHS Open Data Stories that will allow stakeholders to share how open data improved people’s lives in real time.
- Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are most
+ *Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are most
important to the public, and ensure that success metrics and indicators capture those priorities.
(30 行未修改)
2014-12-12 02:47 Tom Shih r1907
顯示 diff
(178 行未修改)
2014-12-12 02:47 羅佩琪 r1906
顯示 diff
(143 行未修改)
*Possible Pathways
*Develop NHS Open Data Stories that will allow stakeholders to share how open data improved people’s lives in real time.
- Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are most
+ Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are most
important to the public, and ensure that success metrics and indicators capture those priorities.
(30 行未修改)
2014-12-12 02:47 Tom Shih r1905
顯示 diff
(78 行未修改)
*published without proprietary condition
*available online in a downloadable format
- *Application: after non-personally identifiable (through anonymization or pseudonymization)
+ *Application:
+ * after non-personally identifiable (through anonymization or pseudonymization)
*land records
*welfare schemes
(94 行未修改)
2014-12-12 02:47 – 02:47 羅佩琪 r1901 – r1904
顯示 diff
(141 行未修改)
*Possible Pathways
-
+ *Develop NHS Open Data Stories that will allow stakeholders to share how open data improved people’s lives in real time.
+ Use surveys, social media, and sentiment analysis to learn what dimensions of healthcare improvement are most
+ important to the public, and ensure that success metrics and indicators capture those priorities.
(29 行未修改)
2014-12-12 02:46 – 02:47 Tom Shih r1888 – r1900
顯示 diff
(78 行未修改)
*published without proprietary condition
*available online in a downloadable format
- *Application:
+ *Application: after non-personally identifiable (through anonymization or pseudonymization)
+ *land records
+ *welfare schemes
+ *political operations
+ *fundraising
*Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
(88 行未修改)
2014-12-12 02:45 – 02:45 羅佩琪 r1886 – r1887
顯示 diff
(137 行未修改)
*Possible Pathways
+
+
4) DEVELOP A COMMON ASSESSMENT FRAMEWORK
(28 行未修改)
2014-12-12 02:42 – 02:45 Tom Shih r1859 – r1885
顯示 diff
(71 行未修改)
*Open data is released in ways that protects private, personal or proprietary information
*It is structured for usability and computability.
- *openness :
+ *Openness :
*easier to find data
*present usable format
(2 行未修改)
*published without proprietary condition
*available online in a downloadable format
+ *Application:
+ *Belief: The data transparency might prove to be a particularly revolutionary tool when it is applied to health information
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(26 行未修改)
*我不太知道怎麼取捨QAQ pathway的部分我先全貼,再想想怎刪修比較好
- *沒關係, 我覺得看完比較知道怎樣跟gov 溝通和push
+ *沒關係, 我覺得看完比較知道怎樣跟gov 溝通和push; 以後有人要找參考資料, 這邊可以當base
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
(54 行未修改)
2014-12-12 02:42 – 02:42 羅佩琪 r1857 – r1858
顯示 diff
(132 行未修改)
3) STAY FOCUSED ON WHAT REALLY MATTERS.
- Too often, indicators used to measure open data only quantify the level of use (e.g., the number of datasets used or money
- saved). The metrics that really matter, however, are those that are focused on improving people’s health and lives.
+ Too often, indicators used to measure open data only quantify the level of use (e.g., the number of datasets used or money saved). The metrics that really matter, however, are those that are focused on improving people’s health and lives.
*Possible Pathways
(30 行未修改)
2014-12-12 02:42 – 02:42 Tom Shih r1854 – r1856
顯示 diff
(108 行未修改)
*我不太知道怎麼取捨QAQ pathway的部分我先全貼,再想想怎刪修比較好
- *沒關係, 我覺得看完比較知道怎樣跟gov 溝通
+ *沒關係, 我覺得看完比較知道怎樣跟gov 溝通和push
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
(55 行未修改)
2014-12-12 02:42 羅佩琪 r1853
顯示 diff
(134 行未修改)
Too often, indicators used to measure open data only quantify the level of use (e.g., the number of datasets used or money
saved). The metrics that really matter, however, are those that are focused on improving people’s health and lives.
+
*Possible Pathways
(29 行未修改)
2014-12-12 02:42 Tom Shih r1852
顯示 diff
(108 行未修改)
*我不太知道怎麼取捨QAQ pathway的部分我先全貼,再想想怎刪修比較好
- *沒關係, 我覺得看完比較知道怎樣跟gov
+ *沒關係, 我覺得看完比較知道怎樣跟gov 溝通
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
(54 行未修改)
2014-12-12 02:42 羅佩琪 r1851
顯示 diff
(132 行未修改)
3) STAY FOCUSED ON WHAT REALLY MATTERS.
-
+ Too often, indicators used to measure open data only quantify the level of use (e.g., the number of datasets used or money
+ saved). The metrics that really matter, however, are those that are focused on improving people’s health and lives.
*Possible Pathways
(29 行未修改)
2014-12-12 02:20 – 02:42 Tom Shih r1621 – r1850
顯示 diff
- THE OPEN DATA ERA IN HEALTH AND SOCIAL CARE
+ 開放資料時代之健康及社會照顧
+ *THE OPEN DATA ERA IN HEALTH AND SOCIAL CARE
*此為大綱: (若有人願意畫重點(copy&paste), 翻譯)
*可作為 health domain , open data persuasion for government 的藍圖
*Source : http://thegovlab.org/nhs/ 有pdf
- *Forward
+ *Forward (finish)
*Evidence suggests that giving patients access to their own healthcare records can increase healthy behavior and improve decision-making.
*Giving providers access to comparative performance indicators across hospitals and physicians increases cost-efficiency in the healthcare system
(7 行未修改)
*Interoperability
*The development of seamless digital records across all care settings, based on open standards
- *EXECUTIVE SUMMARY
+ *EXECUTIVE SUMMARY(finish)
*Open data: is publicly available data that can be universally and readily accessed, used, and redistributed free of charge.
*Change: the way governments, nonprofits, and the private sector use data to understand public issues and solve problems in areas as diverse as financial regulation, energy, education, and more.
(9 行未修改)
*Assess risks , challenges and potential economic and social benefits
*Establish ODLE
- *Introduction
+ *Introduction(finish)
*舉例:
*Mastodon C (Open Data Institute in Shoreditch) :
(28 行未修改)
Health Data and the Open Data Revolution
The NHS and Open Data: Where We Stand
-
-
+ *Trend of big data and open data is related, but not identical !
+ *Bid data :
+ *data explosion : In late 2012, it was estimated that there existed some 2.8 zettabytes (2.8 trillion GB) of data; this was expected to grow to 40ZB by 2020
+ *value: €32 billion in 2010, with a 7% annual growth rate (EU)
+ *Open data :
+ *Open data is publicly available data that can be universally and readily accessed, used, and redistributed free of charge.
+ *Open data is released in ways that protects private, personal or proprietary information
+ *It is structured for usability and computability.
+ *openness :
+ *easier to find data
+ *present usable format
+ *streamline terminology
+ *readable, comprehensible by individual
+ *published without proprietary condition
+ *available online in a downloadable format
*II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
(26 行未修改)
*我不太知道怎麼取捨QAQ pathway的部分我先全貼,再想想怎刪修比較好
+ *沒關係, 我覺得看完比較知道怎樣跟gov
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
(53 行未修改)
2014-12-11 09:32 – 09:43 羅佩琪 r1437 – r1620
顯示 diff
(92 行未修改)
As much as the NHS might intend or desire to open all its data, there do of course exist practical constraints. An ODLE can help prioritize which data to make open, and in what
way.
+
+ *我不太知道怎麼取捨QAQ pathway的部分我先全貼,再想想怎刪修比較好
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
+ *Possible Pathways
+ *Develop an NHS Open Data “Do and Learn Tank.” Unlike a traditional think tank, this would be structured to help launch new projects using lessons from existing programmes and initiatives and evaluate their results.
+ *Set up an NHS Data Geek Squad to create a corps of volunteer data geeks and researchers from Britain’s best universities to work with open health data. This could be modeled on Datakind in the U.S., or on Code for America (although Code for America focuses its work city by city rather than by datasets).
+ *Connect research organizations already existing within the NHS, such as the NIHR.ac.uk, that are already examining the impact of open data.149
+ *Use prizes to stimulate new solutions to public problems using open health data, as the UK and U.S. governments have already begun doing.
+ *Develop campaigns designed to promote data sharing, and raise awareness about the release of open datasets, their locations online, and their potential uses by the public.
+ *Set up an open health data academy that trains people to use open health data and measure its impact, using online learning, project-focused instruction, and mentoring.
+ *Fund the creation of NHS open health data fellowships for students and graduates with compelling ideas and practical ways to implement them.
+ *Develop an open health data mentor network to encourage and train new recruits and younger members of the NHS in the use of open data.
2) ENGAGE THE PUBLIC IN DEFINING METRICS
+
+ *Possible Pathways
+ *Develop a citizens’ open health data panel (similar to Hackney’s online citizen panel) to review metrics on a regular basis.
+ *Facilitate user-led design exercises to better understand how open data can support stakeholders’ work and ultimately improve people’s lives.
+ *Design and implement online mechanisms such as ratings and feedback tools to gauge public opinion and solicit insights from citizens.
+ *Create a “Metrics Bank” of important indicators, with input from stakeholders, researchers, and experts in the field who have studied the relevant literature.
+ *Prioritize the creation of an inventory of datasets by departments within the NHS, and invite experts to curate the datasets released to the public.
3) STAY FOCUSED ON WHAT REALLY MATTERS.
+
+ *Possible Pathways
4) DEVELOP A COMMON ASSESSMENT FRAMEWORK
+
+ *Possible Pathways
5) STAY FLEXIBLE AND ADAPTIVE IN MEASURING IMPACT.
+
+ *Possible Pathways
6) SHARE WHAT IS LEARNED (INCLUDING FAILURES) WITH EVERYONE
+
+ *Possible Pathways
7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
+
+ *Possible Pathways
8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
+
+ *Pathway
9) PUBLISH, INTEGRATE AND FINE-TUNE THE OPEN DATA CONCEPTUAL FRAMEWORK
+
+ *Possible Pathways
10) ENGAGE STAKEHOLDERS IN SHAPING THE OPEN HEALTH DATA PROGRAMME
+
+ *Possible Pathways
*V. Conclusion
2014-12-11 07:59 – 08:44 Tom Shih r857 – r1436
顯示 diff
THE OPEN DATA ERA IN HEALTH AND SOCIAL CARE
*此為大綱: (若有人願意畫重點(copy&paste), 翻譯)
- *可作為 government persuasion 的藍圖
+ *可作為 health domain , open data persuasion for government 的藍圖
*Source : http://thegovlab.org/nhs/ 有pdf
(15 行未修改)
*Review case studies and published research to highlight the following value for using more open data in healthcare:
*Accountability : healthcare organizations
- *Choice: p
- *Efficiency
- *Outcomes
- *Patient satisfaction and customer service
+ *Choice: patients make informed choices
+ *Efficiency : improving efficiency and cost-effectiveness of healthcare delivery
+ *Outcomes : improving treatment outcome
+ *Patient satisfaction and customer service : educate patients and family to make healthcare institutions more responsive
*Economic growth and innovation
- *I. The open data era
+ *Central Goal of this paper :
+ *To establish a conceptual framework, or logic model, that can be used by researchers and programme managers to design their open data initiatives and then measure their impact
+ *Assess risks , challenges and potential economic and social benefits
+ *Establish ODLE
+ *Introduction
+ *舉例:
+ *Mastodon C (Open Data Institute in Shoreditch) :
+ *Do: Analysis massive amounts of data on prescription patterns released by the NHS.
+ *Results: significant geographic variations across England
+ *Difference: expensive prescription drugs being prescribed in some areas when generics would work just as well
+ *Impact: if change prescription pattern => Saves $ 1 billion GPB/year
+ *Society for Cardiothoracic Surgeons:
+ *Do: publishing the results of surgeries done by individual physicians across the UK
+ *Found: Surgical outcomes improved rapidly
+ *Impact : recording/reporting/publishing outcomes => improve quality of care
+ *NHS:
+ *Do: friends and family” study : ask patient/family to recommend hospital or care center. Then publish the ratings
+ *Difference : no rating data => rating data available
+ *Impact: Give consumers more information and choice , improving care provider quality
+ *
+ *UK experience :
+ *Healthcare is one of the sectors with the potential to be most radically transformed by greater data accessibility.
+ *the NHS has invested substantial resources (financial and intellectual) into developing a comprehensive open data strategy
+ *Information concerning GP prescribing, mortality rates, waiting times, and a wide variety of other data has been released to the public and researchers
+ *An incipient ecology of innovation, analysis and research has begun to emerge as a result of such initiatives
+ *Philosophical (or ethical) argument for open data
+ *1. information whose collection is paid for by taxpayers should be available to those taxpayers
+ *2. personal information about individuals (e.g., medical data) should likewise be accessible to those individuals
+ *impact:
+ * it facilitates third parties to use it in ways that create new analyses, visualizations, and mash ups
+ *Solving complex challenges requires many people with diverse skills and talents to work together
+ *When experts of all kinds have access to open data, it becomes a catalyst for creative problem solving and community innovation
+ *By making data open, you enable others to bring fresh perspectives, insights, and additional resources to your data, and that’s when it can become really valuable.
+ *the ambitious plan to shift an entire nation’s bureaucracy to more evidence-based decision-making
+ *I. The open data era (OD as a driver of innovation)
Health Data and the Open Data Revolution
- The NHS and Open Data: Where We Stand
+ The NHS and Open Data: Where We Stand
- *II. Potential and limitations of open data
+ *II. Potential and limitations of open data (the arguments in favor of using OD in a healthcare setting)
Value Propositions for Using Open Health Data
*Accountability
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1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
+
2) ENGAGE THE PUBLIC IN DEFINING METRICS
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*Review case studies and published research to highlight the following value for using more open data in healthcare:
*Accountability : healthcare organizations
- *Choice: patients
+ *Choice: p
*Efficiency
*Outcomes
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*Review case studies and published research to highlight the following value for using more open data in healthcare:
*Accountability : healthcare organizations
- *Choice
+ *Choice: patients
*Efficiency
*Outcomes
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*Change: the way governments, nonprofits, and the private sector use data to understand public issues and solve problems in areas as diverse as financial regulation, energy, education, and more.
*Review case studies and published research to highlight the following value for using more open data in healthcare:
- *Accountability
+ *Accountability : healthcare organizations
*Choice
*Efficiency
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*Impact : To add what value to the NHS and the UK as a whole ?
- *IV. Building an open data learning environment
+ *IV. Building an open data learning environment (ODLE)
As much as the NHS might intend or desire to open all its data, there do of course exist practical constraints. An ODLE can help prioritize which data to make open, and in what
way.
+
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
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*IV. Building an open data learning environment
As much as the NHS might intend or desire to open all its data, there do of course exist practical constraints. An ODLE can help prioritize which data to make open, and in what
- way. It serves as a foundation for future open data initiatives, guiding the NHS in its ongoing efforts to achieve greater transparency and the six value propositions outlined in this paper.
-
+ way.
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
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*IV. Building an open data learning environment
+ As much as the NHS might intend or desire to open all its data, there do of course exist practical constraints. An ODLE can help prioritize which data to make open, and in what
+ way. It serves as a foundation for future open data initiatives, guiding the NHS in its ongoing efforts to achieve greater transparency and the six value propositions outlined in this paper.
+
1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
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*Interoperability
*The development of seamless digital records across all care settings, based on open standards
+ *EXECUTIVE SUMMARY
+ *Open data: is publicly available data that can be universally and readily accessed, used, and redistributed free of charge.
+ *Change: the way governments, nonprofits, and the private sector use data to understand public issues and solve problems in areas as diverse as financial regulation, energy, education, and more.
+ *Review case studies and published research to highlight the following value for using more open data in healthcare:
+ *Accountability
+ *Choice
+ *Efficiency
+ *Outcomes
+ *Patient satisfaction and customer service
+ *Economic growth and innovation
*I. The open data era
Health Data and the Open Data Revolution
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*IV. Building an open data learning environment
+ 1) BUILD AN OPEN DATA LEARNING CAPACITY AND CULTURE WITHIN THE NHS.
+
+ 2) ENGAGE THE PUBLIC IN DEFINING METRICS
+
+ 3) STAY FOCUSED ON WHAT REALLY MATTERS.
+
+ 4) DEVELOP A COMMON ASSESSMENT FRAMEWORK
+
+ 5) STAY FLEXIBLE AND ADAPTIVE IN MEASURING IMPACT.
+
+ 6) SHARE WHAT IS LEARNED (INCLUDING FAILURES) WITH EVERYONE
+
+ 7) BUILD A RESEARCH NETWORK AND EXPERT NETWORK
+
+ 8) DEVELOP OPEN HEALTH DATA ECOLOGY MAP
+
+ 9) PUBLISH, INTEGRATE AND FINE-TUNE THE OPEN DATA CONCEPTUAL FRAMEWORK
+
+ 10) ENGAGE STAKEHOLDERS IN SHAPING THE OPEN HEALTH DATA PROGRAMME
*V. Conclusion
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- Untitled
+ THE OPEN DATA ERA IN HEALTH AND SOCIAL CARE
+ *此為大綱: (若有人願意畫重點(copy&paste), 翻譯)
+ *可作為 government persuasion 的藍圖
+ *Source : http://thegovlab.org/nhs/ 有pdf
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+ *Forward
+ *Evidence suggests that giving patients access to their own healthcare records can increase healthy behavior and improve decision-making.
+ *Giving providers access to comparative performance indicators across hospitals and physicians increases cost-efficiency in the healthcare system
+ *Giving researchers access to clinical data improves medical outcomes
+ *Giving the public-at-large access to nationwide prescription data and hospital performance increases choice, empowerment and accountability.
+ *NHS: to increase patient power, save lives, improve quality of treatment
+ *Transparency
+ *The safe sharing of data and information between clinicians, patients, and the public
+ *Participation
+ *Supporting patients and citizens to take more control of their health and care and fully engage in the design of local services
+ *Interoperability
+ *The development of seamless digital records across all care settings, based on open standards
+ *I. The open data era
+ Health Data and the Open Data Revolution
+ The NHS and Open Data: Where We Stand
+
+
+ *II. Potential and limitations of open data
+ Value Propositions for Using Open Health Data
+ *Accountability
+ *Choice
+ *Efficiency
+ *Outcomes
+ *Customers Service and Patient satisfaction
+ *Innovation and Economic growth
+
+ Potential Challenges and Barriers of Open data
+ *Culture and Institutional Barriers
+ *Privacy
+ *Standards and Interoperability
+ *Good Analysis
+
+ *III. Toward a conceptual framework for open data in healthcare
+ *What is a conceptual framework and why do we need one?
+ *Inputs : what open data set was used ?
+ *Users : Who is using the data ?
+ *Activities: How is data used ?
+ *Outputs: What was the value produced by the open data initiative(activity)?
+ *Indicators : To what end ?
+ *Methodologies to Measure impact : According to to what measure?
+ *Impact : To add what value to the NHS and the UK as a whole ?
+
+ *IV. Building an open data learning environment
+
+ *V. Conclusion
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+ Untitled
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